NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). Program will offer 10 scholarships to outstanding students living with GI disease, pursuing their higher education goals. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. An educational scholarship to full-time undergraduate students at JSU, with a preference to those with a sensory impairment. Hemophilia, Bleeding/Clotting Disorders, Von Willebrand Disease. Grants provided for children and adults with Cystic Fibrosis for recreational activities that help with physical as well as social and emotional health. Living with a rare disease can create many challenges accessing education shouldnt be one of them. The fund is open to individuals who have been diagnosed with a rare disease. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Program awards scholarships to high school seniors with disabilities pursuing higher education. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program provides scholarships to assist people living with cystic fibrosis and those students who are the children of parents with cystic fibrosis (living or deceased) who are pursuing undergraduate and graduate degrees. Full and partial scholarships awarded to families with children attending DYF programs. Program offers scholarships to students living with Type 1 diabetes. Program awards scholarships to children and young adults living with sickle cell/and or thalassemia. Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. Programs awards multiple $5000 scholarships to students in communication science master's or doctorate programs. Program awards a scholarship to students with autism disorders pursuing higher education in a technology field. Scholarships awarded for LGBTQ undergraduate students in Engineering pursuing degrees in STEM programs to promote academic excellence and increased visibility of talented LGBTQ+ students in STEM careers. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Childhood Cancer, Cancers, Child with a parent or sibling who has or had cancer, Cancer - All in a loved one. Rare Diseases . Program offers financial scholarships and support services to students diagnosed with epilepsy. Cancers, Cancer - All in a loved one, Mesothelioma. Scholarship awarded to an outstanding undergraduate student who is being treated for a diagnosed mental health condition. Provides a scholarship to a student affected by cancer. An educational scholarship for an individual diagnosed with epilepsy. Program awards a scholarship to a college student who has been affected by Mesothelioma or any other cancer, either by their own diagnosis or that of a family member or friend. Program provides a scholarship to a high school senior with an identified learning disability pursuing higher education. NeedyMeds, a registered 501(c)(3) national nonprofit (#46-3091990), makes every effort to ensure the accuracy of the information on the website. Contact NeedyMeds if you find any content errors. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. Program offers scholarship to any girl who is motherless for any reason to assist in furthering their education goals. An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. Program awards scholarship to individuals affected by childhood hemiplegia , hemiparesis, or pediatric stroke to further their education. This scholarship program is through Sanofi. Program offers scholarships to individuals with disabilities pursuing higher education. Crohn's Disease, Bowel Diseases, Inflammatory Bowel Disease, Digestive and GI conditions, Ulcerative Colitis, Irritable Bowel Syndrome (IBS). Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Cancers, Cancer - All in a loved one, Child with a parent or sibling who has or had cancer, Childhood Cancer. Child with a parent or sibling who has or had cancer, Bereavement. Bereavement, Cancer - All in a loved one, Childhood Cancer. The application deadline is Aug. 28 at 3 p.m. CDT. Our organization is run 100% by volunteers and 100% of the money we raise is used to assist students or brain tumor families during the most difficult time in their lives. National - (Preference will be given to MO and IL applicants). Program offers scholarship for those affected with a bleeding disorder pursuing further education in a health related field. An educational scholarship for students with a diagnosed mental illness. Suite 700 Program awards scholarships to graduating high school senior students, pursuing higher education and have a parent who has passed away due to cancer, or who is currently battling cancer. Program provides financial assistance to help students affected by behavioral health issues move forward in their education. Hemophilia, Hemophilia - Inhibitors, Congenital Factor XIII Deficiency. Grants not exceeding $5,000 will go towards tuition or expenses related to classes or a postsecondary program. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . Program awards scholarships for the legally blind attending a technical college. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. Program offers financial support scholarships for exceptional students living with a chronic inflammatory diseases. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling . If you're living in the U.S. with a rare disease and age 17 or older, this scholarship could help you pursue your learning goals. Summer internship program for any undergraduate student, law student, graduate student or recent graduate from a US college or university who self-identifies as an individual with any type of disability. Forming a new rare disease community. Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program offers annual scholarship to a high school senior accepted into a Learning program at the University of the Ozarks, Arkansas. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Educational scholarships awarded to high school seniors who have been affected by cancer, either by their own diagnosis or that of a loved one. Program provides scholarships to students who are legally blind and striving to obtain a college education. Program provides financial assistance to individuals with hemophilia for GED certification. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Phone: 1-800-936-1363. This scholarship is for young women pursuing a STEM major. Browse the GARD list of rare diseases to find topics of interest. An educational scholarship for students attending a California college/university with an intellectual disability or is on the autism spectrum. For link problems or other technical problems, send an email to A scholarship for a disabled student, either a graduating high school senior accepted into an accredited school or an undergraduate student. A scholarship for students who have been diagnosed with lyme disease. Addiction, Substance Abuse, Mental Illnesses. Last Modified 04/15/2020 16:42:26. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Program provides scholarships to high school seniors or undergraduate students with cystic fibrosis. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program provides two (2) scholarships to students who are blind or visually impaired pursuing higher education in the field of engineering or in computer, physical, or life sciences. Disability - Physical, Disability - Cognitive, Disability - Emotional, Learning Disability, Social Disability, Sensory Disorders. Educational scholarships awarded to individuals who have been affected by cancer, either by their own diagnosis or that of a loved one. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. There are 365 scholarship(s) in National. Provides scholarship awards of up to $1000 to young college bound adults diagnosed with ADHD or other learning disabilities. Program awards scholarships to students who are legally blind pursuing higher education. Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Keynote " The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility" Sarah Wicks, JD, MPH. Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. Program provides competitive internships to students with apparent and non-apparent disabilities studying science, engineering, mathematics, computer science and some fields of business. College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. $2,500 Educational scholarship for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Awardees will be notified in October. HONcode standard for trustworthy health information: Program provides college scholarships to individuals diagnosed spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, or ostomy (ileostomy, colostomy, or urostomy). https://www.youtube.com/watch?v=F1E6yMXv-1U, Oxygenated hemoglobin may be prognostic marker in SSc: Study, Levels of 3 blood proteins help identify SSc progression risk: Study, The Autoimmune Slayers journey since her scleroderma diagnosis, Talaris stops 2 kidney transplant trials of cell therapy FCR001 in dcSSc, How I find my Zen while living with scleroderma, The uncertainty of scleroderma leaves me frustrated, overwhelmed, COVID-19 linked to reduced blood flow in girl with scleroderma, New study reveals mechanisms for UVA1 phototherapy in scleroderma, Scleroderma makes me feel like my body has betrayed me, FT011 safely eases SSc symptoms, aids lung health in Phase 2 Trial, EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US. Scholarship assistance solely to Out Black lesbians over the age of 50 attending any technical, undergraduate or graduate school located in the United States. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. However, we can't guarantee the accuracy or completeness of the information. Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Sort by: Name **Filter Feature In Development** In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. The application deadline is Aug. 28 at 3 p.m. CDT. Scholarships for the Outward Bound intervention and educational programs in the wilderness for at-risk and troubled youth and young adults ages 12-21 years old. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Scholarship award offered to one student who has been impacted by cancer. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. Advocating for Patient-Centered, Data-Driven Policy NORD helps drive more effective government policies by elevating the voice of the rare disease community. Veterans - Disability/Injured-Families, Victims of 9/11 and/or family member. Fund awards annual scholarships to help improve the quality of life for those affected by Leukemia/Lymphoma. Program provides up to 3 scholarships towards college education to childhood cancer survivors. This scholarship is for students pursuing a STEM major. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. Applications accepted from early December - early May annually. 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